This is the story of my life as a SAHM to a deaf-blind former 24 week preemie. Isolating, frustrating, heartbreaking, and so worth it.
Wednesday, January 19, 2011
Star Student (I knew this day would come)
I just received an e-mail from Noah's teacher that Noah will be star student next week. The star student has a board in the classroom where all sorts of information about them are posted. There are also pictures about their life: the family vacation last summer, learning to ride a tricycle, baby pictures, etc. Every time I look at these boards I feel a lump in the pit of my stomach. I knew that this day would come and I would have to make a decision. I have numerous baby pictures of Noah, many of which I cherish, but none of them look like normal baby pictures. I have a pictures of Noah coming home from the hospital: all 3 times. I have a picture of his first extubation and the day that they put two IVs in his head and he looked like he had horns. I have a picture of him propped next to his pulse ox the first time he satted 100 without O2 and pictures of him covered in tape from the times where he had to have O2, hearing aids, and eye patches all at the same time. These are all fond, happy memories, but I'm not sure I'm ready to share any of that with Noah's kindergarten class. They're my special memories and I don't think the teachers and parents would understand why they're so special. At least I have until Monday to decide.
Sunday, January 2, 2011
Dear Teacher, (the real letter)
We would be happy to discuss your concerns about Noah mentioned in the frequent notes and e-mails prior to Christmas break. We don’t feel that we were able to communicate effectively with you in writing, so hopefully an in person meeting will help. Please let us know a few possible times and we will get back to you with what is best for us.
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