Saturday, April 26, 2008
He didn't talk.
We tried to interact with him. He knows a lot of signs now if you do them close to his face so he can see.
He just moped.
When we got home we got him a fresh battery and he went back to singing and smiling and non-stop talking/signing. It's days like today that make me realize the CI was the right choice.
I haven't had any free time since May 2005 when they stuck my in a hospital bed, hooked me up to the mag, and told me to lay on my left side and not move. Ok, I guess technically that was free time. But I wasn't allowed TV, the phone, visitors, or sitting up, and the triple vision from the mag didn't help if I tried to read a book so it wasn't exactly relaxing.
Recently, (think: yesterday) we received notice that Noah's Medicaid has been reinstated. Wahoo!! We got in through a waiver program for disabled people. In addition to Medicaid we've also qualified for at least 10 hours a week of attendant care for Noah and 720 hours of respite a year to be used however we like. I really can't remember what one does with free time. Grocery shopping? Cutting the lawn? I used to have free time, I know I did. It's just been too long...
Thursday, April 24, 2008
Today she wanted to work on "proprioceptive" activities. All well and good, until she wants me to squish him with pillows. Ummmm... yeah. Do you want to see what he had for lunch today? And then when he gagged because the piece of playdough he was rolling picked up a cat hair (thus changing the texture) she wondered aloud how it was possible that a kid could be both sensory seeking and sensory aversive. I don't know. He just is. Beverly understood.
Why am I doing this again?!Maybe I should be like Kathie Snow and just cancel all the therapy. Or maybe my therapists shouldn't get pregnant so as to take maternity leave right before my son transitions (Are you listening, Beverly?). That's the ideal solution, really. Oh, and they shouldn't move to Austria, either (I'm talking to you, Jamie Sue!). Seriously - you'd think Noah would be more of a priority in their lives.
Monday, April 21, 2008
I've started making nasty comments about women and their cute little take home babies.*
I keep pulling out all the NICU pictures and:
- falling in love all over again
- marveling that the OG tube was so close to the size of his fingers and the leads covered almost his whole chest
I alternate between telling myself that it wasn't that bad/was worth it and wondering what I did to deserve the hell that we've been through.
Has it really been almost three years?
* To all of my friends who have recently had full term babies or are planning on it in the next month I promise to be happy for you starting sometime in June.