Saturday, May 29, 2010


It's so much fun now that Noah is starting to learn how to have conversations, but little boys talk about the weirdest things.

Noah (as we pull into a parking lot): Where are we?

Mom: We're at Lowe's.

Noah: I like to ride in the race car at Lowe's, but no puking!

Mom: I like the race car shopping carts too.

Noah: Do you know what puke means?

Mom: What?

Noah: It means to throw up all your food on your clothes and have to put your pajamas on.

Mom: Do you need to throw up?

Noah: No thank you. I want to ride in the race car!

Thursday, May 20, 2010

a busy week

This is what our week looks like next week:

Monday: AV therapy
Tuesday: Closing on our new house! :-)
Wednesday: Field trip to the strawberry patch
Thursday: Company arrives for the weekend and annual IEP
Saturday: Painting party and then birthday party
Sunday: Noah turns 5!

We were thinking of moving on Memorial Day, but we pushed it off to the weekend for the sake of our sanity.

Sunday, May 9, 2010

Happy Mother's Day!

Being a mother is not easy.

I visited my baby in the NICU for the first 186 days of his life (3 hours away for most of that time), and then had to give him back to the PICU 3 days after he came home.

I watched my baby code twice and made the decision of whether he should live or die many more times than that.

I sat in a waiting room hoping for a good outcome for 4 different surgeries. Would he live? Would he see? Would he hear?

I have (often laboriously) fed my child for the past 4.5 years, many times only to see that hard fought meal come right back up again.

I have driven thousands of miles taking my child to therapies that he needed that couldn't be had locally and then spent many many hours working on therapy homework and making it seem like play.

I have gone to numerous conferences, some far away, to learn more about how to better parent the mystery that is a verbal deaf blind child.

I have done everything for my child, but sometimes I forget about me.

Take today and do something just for you!

Happy Mother's Day!