I'd hate to continue thinking these people are crazy if I'm just uninformed.
Friday, September 28, 2007
Tuesday, September 25, 2007
Saturday, September 22, 2007
Wednesday, September 19, 2007
Preemie Communications, Inc., the parent company of Preemie Magazine, regrets to inform you that the company has officially shut down and is undergoing bankruptcy proceedings. This is an unfortunate outcome for such a promising community, but a necessary one due to the inability to attract new owners/investors to cover expenses and debts. The company is truly saddened by this turn of events, but would like to thank all our readers and supporters for helping us fulfill our mission in educating so many parents and professionals in the preemie community over the last two years.
Preemie Magazine/Preemie Communications, Inc.
a. throwing everything away and buying all new toys
b. pretending you don't notice until your husband gets home from work 7 hours later
until you choose
c. dump the whole thing in the bathtub and turn on the shower (if it's not washable it's not worth saving anyway)
Only 2 weeks and 6 hours until we leave for Houghton! I'm going to go here and here and maybe even here.
Tuesday, September 18, 2007
My son is deaf, I'm not. I chose to have him implanted with a cochlear implant at 21 months old because I wanted him to be able to communicate through spoken language. I don't hate the Deaf culture or want to keep my son from his deaf identity. In fact, I spend a good deal of time trying to find opportunities to learn more about Deaf culture. I've exposed my son to sign language from infancy and he is able to sign a few words. He's by no means fluent in sign, nor am I. He has significantly more spoken English than signs. You see, my son is also visually impaired. Does that make him less deaf? Deaf Awareness Week is fast approaching and I would like to take my son to some Deaf Awareness activities. When I look at various sites I find silent suppers. I can sign eat and so can Noah. We also know banana, cereal, thank you, and more. Does that mean we can come? Or will I be shunned because I don't know enough sign language? Will my son be shunned because of the magnet in his head? I think that it would be a beautiful thing to go to a Deaf theater production. Would I be lost because I can't sign enough? Would people glare at me if I spoke to my husband during intermission? I have also read about protests planned at places that support Auditory Verbal Therapy or AG Bell. My son goes to AVT every Monday. If I protest in front of his therapy center will that make me a better parent of a deaf child? Will it help my son to better understand what it means to be deaf? You see, my son will always be deaf. Even with a cochlear implant and spoken language. You understand what that is like, I don't. I wish that the Deaf community would embrace hearing parents of deaf children. I want someone to help me explain to my son that it's ok to be different. He might believe you because you know what it's like to be different too. Unfortunately all too often I find the Deaf community judgemental of hearing parents. We're bad parents because we want our children to hear and speak. Is that an unfair statement? Is it wrong to want my son to be like me? You teach your hearing children to sign, don't you? I don't want my son to be unkind to people who make different choices than what he would make. Does he have to be like that to fit in with Deaf culture? Please help me to understand.
The hearing mother of a deaf child
Wednesday, September 12, 2007
Tuesday, September 11, 2007
Wednesday, September 5, 2007
Tuesday, September 4, 2007
Don't those lungs look healthy to you? Just think how bad they would've been!
2. I drove 2 hours each way every day to visit my son in the NICU for the last 4 months of his hospital stay. For the first 2 months he was only 40 minutes away, but even that deserves an award.3. I chose an outfit for Noah to be buried in when he was 2 months old. We were told he would not live and we had come to grips with that. I think sometimes the most loving thing you can do is being willing to let go.
4. I've "helped" with things that would make most people more than a little uncomfortable. I've held my son's head still so his vent could be retaped, his PICC line could be retaped.... pretty much anything that his devious little hands could reach I've held him still or taped it down. I've watched retinal exams and my son's hernias being reduced. I held the C-PAP on for an hour when my son was extubated the first time because it didn't fit right and kept falling off.
5. I stick a magnet to Noah's head numerous times a day. He pulls it right back off again, but I just do it again (and I rarely complain about it).
5. I learned how to insert an ng tube. I did it more than once even though it made me cry afterwards each time. I did it because having Noah home was more important than my comfort zone.
Can you blame me for using all that tape?
7. I picked out 4 different "coming home" outfits for my son. Ok, so that was fun. But each time he came home meant he had been back in the hospital again - that wasn't so much fun.
I'm kind of partial to #2.