This is the story of my life as a SAHM to a deaf-blind former 24 week preemie. Isolating, frustrating, heartbreaking, and so worth it.
Wednesday, January 21, 2009
Bilateral Bionic Boy?
If you'd asked me two years ago when we were preparing for Noah's first CI surgery, I'd have told you that there was no way that I would ever be interested in getting him a second CI. Choosing to send my son to the OR for an "unnecessary" surgery once was more than enough for me. It either would work or it wouldn't, and at least we tried. And yet today I find myself wondering "Is it better to schedule the surgery for the earliest possible date (March) or should we try to get him in over spring break in April?". In my mind it's not a done deal until they actually preform the surgery, but it sure looks like Noah is going bilateral after all.
Tuesday, January 13, 2009
Periactin
Noah started Periactin on Thursday in an effort to increase his appetite and motivate him to eat. It appears thus far that it has the additional effects of keeping him from coughing, being congested, or vomiting. He took Periactin on Thursday and Friday with no vomit (two days in a row is a record!). We didn't give him any on Saturday or Sunday and he vomited both days, along with early Monday morning. Then we again started Periactin and no more vomit Monday or today (yes, that's right - almost 4 out of the last 6 days without any vomit). If this trend continues it could mean amazing things in terms of Noah feeling safe and comfortable around food, not to mention a huge decrease in laundry. Too bad he can't take it on the weekends.
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