Friday, September 28, 2007

Brain wave monitor?


Are there a number of small children going around wearing brain wave monitors that look like cochlear implants? I wasn't aware that such a thing existed. When Noah's brain waves were monitored they covered his head in a bunch of wires, sand, lemon juice, and gauze. A CI shaped monitor would've been so much easier! First there was the woman who very knowledgably pointed to Noah's CI and said "That's one of those brain wave monitors" to the general public in a doctor's waiting room. She started to explain all about it, but I missed out because we had to see the doctor. Later we met the "He can't come through the metal detector or his brain will stop" airport security gaurd. Today we met the "That's a cute monkey sticker on his brain wave monitor" woman at BJs check out. The best part was when I said "It's a cochlear implant. He's deaf" she nodded knowingly and said "That happened to a little girl at my church. She had to get tubes." Yeah. Ok. Seriously, though. Is there such a thing as a brain wave monitor that looks like this?

I'd hate to continue thinking these people are crazy if I'm just uninformed.

Tuesday, September 25, 2007

Because a little bit of Noah is never enough!



Notice that Noah is continuing to sign and say "baby" throughout the video. He really wants to play with his baby (doll) rather than read a book, but daddy just doesn't get it (or else chooses to ignore it).

Pulmonology

Today at our pulmo appointment the amazing nurse practitioner Molli was being followed by a medical student. She proudly announced that she had the medical student read Noah's entire medical history and case file because he was such an interesting case. The medical student just gave a very weary half smile (in case you didn't know, Noah's medical history and case file consist of boxes full of paperwork and numerous CDs of x-rays, MRIs, ultrasounds, etc.). Poor medical student! She got to help with the history today and asked informed (although niave) questions such as "Has he been to the audiologist recently?", "Are his teeth still green?" and "Will you be continuing in feeding therapy?". I like most medical students. I have much more patience for them than residents who should at least have a bit of a clue about things. In any case Molli (and the medical student) have deemed Noah's lungs "beautiful" and Molli decided not to increase us to twice a day Pulmocort for the winter as was the original plan because he's doing so well. Here's hoping Noah's lungs stay beautiful until spring!

Saturday, September 22, 2007

First Blog Video

My adorable little boy is showing off some of the words and signs that he knows. If it works, that is.

Happy Hearing Birthday, Baby Michael!


Noah was almost a year old when he got his first hearing aids. Fortunately little Michael got his much younger. We hope you enjoy learning to listen!!

Wednesday, September 19, 2007

So Sad

Dear Preemie Magazine Readers:
Preemie Communications, Inc., the parent company of Preemie Magazine, regrets to inform you that the company has officially shut down and is undergoing bankruptcy proceedings. This is an unfortunate outcome for such a promising community, but a necessary one due to the inability to attract new owners/investors to cover expenses and debts. The company is truly saddened by this turn of events, but would like to thank all our readers and supporters for helping us fulfill our mission in educating so many parents and professionals in the preemie community over the last two years.
Respectfully,
Preemie Magazine/Preemie Communications, Inc.

You know you need a vacation when...

You know you need a vacation when your child vomits his entire breakfast in the toy box and you consider:
a. throwing everything away and buying all new toys
and
b. pretending you don't notice until your husband gets home from work 7 hours later
until you choose
c. dump the whole thing in the bathtub and turn on the shower (if it's not washable it's not worth saving anyway)

Only 2 weeks and 6 hours until we leave for Houghton! I'm going to go here and here and maybe even here.