This is the story of my life as a SAHM to a deaf-blind former 24 week preemie. Isolating, frustrating, heartbreaking, and so worth it.
Friday, February 2, 2007
Playing Hooky
Yesterday I woke up not ready to deal with my day. I was sick of being stuck in my house and needed a break. When our speech therapist called to cancel we decided to take the day off from life. Our pulmonologist, I'm sure, would shake her head sternly if she knew we took our little BPDer in public (*gasp*) in the middle of flu/RSV season (*sigh*) but we were very careful. We didn't let Noah touch anything that didn't belong to him personally and we used gallons of purell before touching him. When we were shopping at the mall, we even went as far as to not go down store aisles littered with other people. Things went really well until almost the end of the day. We ate a quiet lunch at a table at Sbarro's far away from everyone else and did tons of shopping. When we were at Target we found these really cute shirts that said "I tried to be good but I got bored" on the front. Unfortunately while we were looking for Noah's size he got bored. He took out his hearing aid and threw it. Not too big of a deal if we had noticed it just then, but of course we didn't notice until we were looking at the video games 10 minutes later. We frantically retraced our steps and finally found the hearing aid (a little dusty but in working order), but it was a harrowing experience. Later we decided to end our day with a bit of dinner at Applebees. That would've been a great idea except for the minor detail that Thursday is family night at our local Applebees. There were a million small children breathing the air close to us and it was a little more than we're used to. Noah was his charming self so we drew lots of attention from the other diners. They all thought he was cute and our waitress even said she wished that when she had kids they were just like Noah. She meant a happy social baby with big dimples who didn't rip up napkins and throw them on the floor like the baby at the table next to us, but I was amused. You want a deaf-blind baby who doesn't eat, can't leave the house and spent the first six months of his life in the NICU? Here, take ours. The big test of our new resolve that it was ok to leave the house sometimes as long as we're careful came just at the end of dinner. The little boy from the next table over came within inches of Noah's face to say goodbye. He literally leaned his germy little face on the edge of Noah's nice germ-free highchair cover. When he started talking, Noah (as is his custom) went to put his nice clean fingers in the germ-monster's mouth. I quickly grabbed his hand and said sternly "don't hit". Fortunately germ-monster's daddy bought my line and extricated him from the situation lest he be beat up by the happy social baby at the next table over. Overall we seem to have survived the day, and it was nice to get out for a little while. I can't wait until spring when we can go to museums and the library and the theatre without feeling guilty.
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2 comments:
I just came across your blog. I know full well what *cabin fever* with a preemie can be like! lol. I am the mom of a former 24 weeker myself. he is 2 and a half now but still in no playgroups or daycare because he does get sick EVERY time he plays with another child. It's frusttrating for sure! I do take him to the mall every other week though and we just turn him loose and let him run! I go in the mornings when everyone is at work/school. He loves the book store! And now we take him to Chuckee Cheese also around 11 a.m. cause hey, no one's there, and they are still walking around with a bottle of bleach sanitizing everything, lol! It'll get better!
Thank god for the internet! lol!
Sammie
www.n8andnoah.com
Hi there, I'm new too. My son is about the same age as Noah, but full term.
I wanted to give you another line that works REALLY well: "Oooh, careful! He has pinkeye!!"
Parents will run screaming from your chubby bubby. :-)
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