Sometimes you get so caught up in the day to day struggles you miss out on the progress that is being made. Since Noah left the day patient feeding program I've felt the constant NICU-like pressure to get him to gain weight (or else!). Each good day is a victory and each bad day a defeat. When we were day patients our nutritionist told me that they didn't all have to be good (feeding) days - as long as there were more good than bad everything would work out in the end. I thought that was really great advice. Unfortunately I spend so much time worrying about the bad days that I don't often notice the good days when they do happen.
Today we had feeding clinic and met with all of the specialists who follow the day patients. They were quite pleased with Noah's progress. Not only has he continued to make (slow) progress as an outpatient, he's growing like crazy. At Noah's discharge he weighed 21 lb 7 oz (9.74 kg) and had a height of just over 30" (76.3 cm). Two months later Noah now weighs 23 lb 6 oz (10.6 kg) and has a height of just under 31" (78.2 cm). If you had asked me yesterday I would've told you he was struggling with his weight gain. Guess it's time to look at the big picture.
4 comments:
Congrats I know how important those pounds are and I know actually what you mean good verses bad days. I too forget about the goods because I am still stressed out over the bad. But if you think about we have days too where we are starving and eat eat eat, then days where we nibble. Any way, if I may ask what type of foods and liquids do you offer noah, I am always searching for possiblities. thanks Tracy
WHOOHOOO Noah! Way to go big guy (and ever patient mommy!). It's hard to take that step back and see how well they are doing sometimes, isn't it? Our little guys have been through so much and have so many diagnoses that it is easy to get lost in the minute to minute-day to day progress and not stop to see that a HUGE hurdle has finally been jumped or a new OT goal was made. Pat yourself on the back for working so hard to get Noah this far. He is certainly thriving.
AWESOME WORK!! :)
You are it!
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